How a Warner Robins family is raising awareness – and money – for a mom with a rare blood disorder

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How a Warner Robins family is raising awareness – and money – for a mom with a rare blood disorder



Shannon Lewis – a mother of two – has received over 60 transfusions while fighting myelodysplastic syndrome

WARNER ROBINS, Ga. — A Warner Robins family is organizing a blood drive Tuesday to support their 32-year-old daughter who has received more than 60 blood transfusions while battling a rare blood disorder.

Shannon Lewis has myelodysplastic syndrome (MDS), a condition that prevents her bone marrow from producing enough healthy red blood cells. The diagnosis came after she experienced severe complications during her second pregnancy, which led to an early delivery.

“Shannon never complains about her illnesses. She has frequent doctor’s appointments and a lot of fatigue, but she’s one tough cookie,” says her mother Valarie Ford, who has been a nurse for 48 years.

Despite her condition, Lewis continues working at her job and staying involved in her two daughters’ activities. Her mother says she maintains a positive attitude while managing multiple medical conditions, including kidney disease and rheumatoid arthritis.

The family has organized previous blood drives at First United Methodist Church in Warner Robins, where they are members. Ford says the community response has been crucial for her daughter’s care, especially as the Red Cross faces supply challenges following recent storms.

The Red Cross has been wonderful supporting us through all of this. But they’re struggling right now to keep up with the demand,” Ford says.

Lewis requires regular transfusions of O-negative blood, which is particularly difficult to source. She recently began seeing a specialist at Emory who focuses specifically on MDS treatment.

The blood drive will be held Tuesday, Nov. 12, from 2:30 p.m. to 6:30 p.m. at First United Methodist Church, located at 205 North Davis Drive in Warner Robins. Appointments are recommended but walk-ins are welcome.

Ford emphasizes that every donation makes a difference. 

“We’re just so grateful to everyone who can come out and donate tomorrow. It’s crucial for Shannon’s care,” she said.

Those interested in donating can visit the church during the drive hours. Donors must be in general good health and at least 16 years old. The Red Cross recommends eating well and staying hydrated before donating.

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